Change to larger font size Change to smaller font size

Maryland Department Of Health And Mental Hygiene

Children And Youth With Special Health Care Needs

Accessible Resource Locator

Go To Graphics Website
For assistance call us at 1-800-638-8864

Browse By Keywords Browse By Services
We found 150 results matching your search criteria 
Fragile X Support group
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X.
Contact Info:
240-838-0115
240-246-3503


Healthy Smiles for Autism
Healthy Smiles for Autism was created by the National Museum of Dentistry to empower parents of children with autism spectrum disorder to establish a healthy oral hygiene routine and prepare their children for a visit to the dentist.
Contact Info:
410-706-0600
31 South Greene Street, Baltimore, MD, 21201

Special Needs Fact Sheets
Fact sheets have been developed for mild to moderate manifestations of a number of special needs conditions. For most conditions there are separate fact sheets for Dental Professionals, Medical Professionals, and Parents and Caregivers. A new General Guidance fact sheet is included and is available in Spanish.
Contact Info:
206-616-6105


Mental Health Association of Maryland
A leader in progressive programs resulting in more effective treatment, improved outcomes for individuals, increased research and greater public understanding of the needs of children and adults living with mental illness.We envision a just, humane and healthy society in which all people are accorded respect, dignity and the opportunity to achieve their full potential free from stigma and prejudice.
Links to More Info:
Contact Info:
410-235-1178
711 W. 40th Street, Baltimore, MD, 21211

One World for Autism
Goal is to implement family support services and complete the design of a multi-disciplinary center that will enable children, adolescents, and their families to access the services in a seamless and unduplicated manner.
Links to More Info:
Contact Info:
301-618-8395
1400 Nalley Terrace , Hyattsville, MD, 20785

The League for People with Disabilities
Agency committed to offering annually more than 2,000 individuals with multiple, physical, cognitive and neurological disabilities the opportunities to gain independence through a comprehensive continuum of vocational, rehabilitative, educational, medical, wellness and social services.
Links to More Info:
Contact Info:
410-323-0500
1111 E Cold Spring Lane, Baltimore, MD, 21239

Maryland School for the Deaf
Available to deaf and hard of hearing Maryland children from birth to age 21. Serving children across a broad spectrum of intellectual and physical abilities, including those with mild to severe additional disabilities and is FREE to Maryland residents.
Contact Info:
301-360-2005
240-575-2975
101 Clarke Place, Frederick, MD, 21705

Maryland School for the Blind
A private, statewide resource center providing outreach, school and residential programs to children and youth from infancy to age 21 who are blind or visually impaired including those with multiple disabilities.
Contact Info:
410-444-5000
3501 Taylor Avenue , Baltimore, MD, 21236

Abilities Network- Epilepsy Foundation Central Region
A non-profit organization that assists individuals with disabilities to achieve their personal goals and reach their maximum potential. We provide extensive training opportunities for families, child care providers, teachers and community members with the goal of fostering inclusion. Other services include, but not limited to: A TEEN program epilepsy group, parent support group, free epilepsy education program for schools, and limited financial assistance for epilepsy-related expenses.
Links to More Info:
Contact Info:
800-492-2523
410-828-7700
8503 LaSalle Rd, Towson, MD, 21286

GEMSS for School
Explains genetic conditions and offer helpful strategies for use in classrooms. These include ideas for emergencies, field trips, diets, communication, instruction, and more.
Contact Info:
603-862-2962
10 West Edge Drive, Durham, MD, 03284

Pathfinders For Autism
Dedicated to helping individuals, parents and professionals find resources, supports and training while working to increase the awareness of autism spectrum disorders and advocating for the needs of individuals with autism and their families.
Links to More Info:
Contact Info:
443-330-5370
303 International Circle, Hunt Valley, MD, 21030

Muscular Dystrophy Association
Association's comprehensive services program includes diagnostic and follow-up medical consultations, flu shots, support groups, MDA summer camps for youngsters, a medical equipment program, assistance with equipment repairs and resource referral.
Links to More Info:
Contact Info:
800-572-1717
410-494-7106
8501 LaSalle Road , Towson, MD, 21286

Alexander Graham Bell Association for the Deaf and Hard of Hearing
Helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.
Links to More Info:
Contact Info:
202-337-5220
3417 Volta Place, NW Washington, DC, 20007

Association of Blind Citizens
The purpose of the Association of Blind Citizens (ABC) is to advance relevant causes, increase opportunities in education, employment, cultural, recreational and other life activities, as well as enhance the social, political, and economic well-being for all persons who are blind or visually impaired. ABC offers publications, informative meetings, a special radio show, In Focus, as well as education, employment, recreational, and cultural opportunities to promote full inclusion in society.
Links to More Info:
Contact Info:
781-961-1023


United Cerebral Palsy
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
Links to More Info:
Contact Info:
800-872-5827
1825 K Street NW , Washington, DC, 20006

Kennedy Krieger
Internationally recognized institution dedicated to improving the lives of children and adolescents with pediatric developmental disabilities and disorders of the brain, spinal cord and musculoskeletal system, through patient care, special education, research, and professional training.
Links to More Info:
Contact Info:
888-554-2080
707 North Broadway, Baltimore, MD, 21205

Hearing and Speech Agency
A private, non-profit organization, that provides hearing and speech services, offers an information resource center, operates a non-public school, and advocates for people of all ages with communication disorders/disabilities.
Links to More Info:
Contact Info:
410-318-6780
5900 Metro Drive , Baltimore, MD, 21215

Johns Hopkins Children’s Center
The Mission of the Johns Hopkins Children’s Center is to provide patient- and family-centered health care in a diverse and inclusive environment, to be a leader in innovative research that leads to prevention and effective treatment of childhood diseases, and to train the next generation of leaders in pediatric medicine. They offer a comprehensive approach to Pediatrics. Named one of the top hospitals in the nation for pediatrics.
Links to More Info:
Contact Info:
410-955-5000
1800 Orleans Street , Baltimore, MD, 21287

University of Maryland Hospital for Children
A valuable resource for critically and chronically injured children, the University of Maryland Children's Hospital combine state-of-the-art medicine with family-centered care.
Contact Info:
866-408-6885
22 S Greene Street, Baltimore, MD, 21201

Maryland Coalition of Families for Children’s Mental Health
the statewide voice for children’s behavioral health and is dedicated to: Building a family-driven network of information and support. Improving services in all systems of care for children, youth and their families.
Links to More Info:
Contact Info:
410-730-8267
800-607-3637
10632 Little Patuxent Parkway , Columbia, MD, 21044

Juvenile Diabetes Research Foundation
JDRF is at the center of the global T1D community— leading the effort to coordinate and galvanize the many key constituents—families, businesses, government, researchers, and other organizations— in the quest to cure T1D.
Links to More Info:
Contact Info:
410-636-8080
825 Hammonds Ferry Road, Linthicum, MD, 21090

Diabetes Prevention and Education
A combination of free education, support and prevention services taught by staff from Atlantic General Hospital and Worcester County Health Department including a Certified Diabetes Educator/Registered Nurse, Registered Dietitian, and an American College of Sports Medicine Certified Exercise Specialist. Support group Meets 3rd Wednesday of every month, 1-2 pm, Snow Hill Library and 3rd Thursday of every month, 1-2 pm, Pocomoke Library.
Contact Info:
410-632-1100
6040 Public Landing Road, Snow Hill, MD, 21863

Spina Bifida association of the Mid-Atlantic
an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. This newly formed organization serves individuals with Spina Bifida and their families in the Washington, DC Metropolitan Area.
Links to More Info:
Contact Info:
866-938-3407
4590 MacArthur Blvd. , Washington, DC,

Deaf Independent Living Association
offers a variety of services, including employment support, residential support, information and referral and communication resources, for Eastern Shore residents with hearing loss. Above all DILA strives to promote active, independent living among the people we serve.
Links to More Info:
Contact Info:
410-742-5052
806 Snow Hill Road, Salisbury, MD, 21804

Anne Arundel County Autism Support Group
Our group is dedicated to the advocacy and developmental needs of children who have been diagnosed with Asperger Syndrome. We meet monthly on the 3rd Wednesday of each month from 7-9pm (during the school year and excluding December. Only contact info is online)


The Balanced Mind Foundation
(Children with mood disorders)- The Balanced Mind Foundation guides families raising children with mood disorders to the answers, support and stability they seek. (Statewide- online)
Links to More Info:
Contact Info:
847-492-8510
566 W. Lake St., Chicago, IL, 60661

iHOMES(Sickle Cell)
Improving Health Outcomes and Medical Education for Sickle Cell Disease Network (iHOMES). Goals are to connect adult patients with sickle cell disease with primary care providers and support the relationship. Help older adolescents and young adults with sickle cell disease to transition smoothly from pediatric to adult primary care doctors. Train primary care providers to care for people with sickle cell disease of all ages and provide the necessary tools to deliver high quality care.
Contact Info:
443-287-0608


American Cancer Society
A nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. The ACS has 12 chartered Divisions, more than 900 local offices nationwide, and a presence in more than 5,100 communities.
Links to More Info:
Contact Info:
800-227-2345
250 Williams Street NW, Atlanta, GA, 30303

United Needs and Abilities
Dedicated to increasing public awareness regarding epilepsy and to providing services that enable people with epilepsy or other developmental disabilities overcome the challenges associated with these conditions. (Caroline, Cecil, Kent, Q. Anne, Talbot), MD Ph:
Links to More Info:
Contact Info:
800-776-5694
688 East Main Street, Salisbury, MD, 21804

Autism Society of America
Increases public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Contact Info:
800-328-8476
4340 East-West Hwy, Bethesda, MD, 20814

American Diabetes Association
Our mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
Links to More Info:
Contact Info:
800-342-2383
1701 North Beauregard Street, Alexandria, VA, 22311

The Leukemia and Lymphoma Society
Here you can find ways to participate in local events supporting our research, patient support and information programs. There are many ways to get involved.
Links to More Info:
Contact Info:
443-471-1600
100 Painters Mill Road , Owings Mills , MD, 21117

Cystic Fibrosis Foundation
A nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
Links to More Info:
Contact Info:
800-344-4823
6931 Arlington Road, Bethesda, MD, 20814

Sickle Cell Disease Association of America
Advocates for and enhances the membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.
Links to More Info:
Contact Info:
800-421-8453
3700 Koppers Street , Baltimore, MD, 21227

Maryland Lyme Disease
Dedicated to educating the public concerning the prevention, diagnosis and treatment of Lyme and tick-borne diseases.
Links to More Info:


Arthritis Foundation
National organization that offers, information, programs, and advocacy for those struggling with Arthritis.
Links to More Info:
Contact Info:
800-365-3811
202-787-5333
1330 W. Peachtree St., Atlanta, GA, 30309

National Institute of Mental Health
Offers, information and advocacy for those with mental illness.
Contact Info:
866-615-6464
6001 Executive Boulevard, Bethesda, MD, 20892

American Academy of Pediatric Psychiatry
Distributes information here, and elsewhere, in an effort to promote an understanding of mental illnesses and remove the stigma associated with them; advance efforts in prevention of mental illnesses, and assure proper treatment and access to services for children and adolescents.
Contact Info:
202-966-7300
3615 Wisconsin Avenue, N.W.Washington, DC, 20016

Learning Disabilities Association of America
Provides support to people with learning disabilities, their parents, teachers and other professionals. At the national, state and local levels, LDA provides cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.
Contact Info:
412-341-1515
4156 Library Road , Pittsburgh, PA, 15234

National Center for Learning Disabilities
Provides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning, and advocates for policies to protect and strengthen educational rights and opportunities.
Contact Info:
888-575-7373
381 Park Avenue South , New York, NY, 10016

Learning Disabilities Online
Helps children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD. The site features hundreds of helpful articles, multimedia, monthly columns by noted experts, first person essays, children’s writing and artwork, a comprehensive resource guide, very active forums, and a Yellow Pages referral directory of professionals, schools, and products.
2775 S. Quincy St., Arlington, VA, 22206

International Rett Syndrome Foundation
Funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
Links to More Info:
Contact Info:
800-818-7388
4600 Devitt Drive, Cincinnati, OH, 45246

International Dyslexia Association
An international organization that concerns itself with the complex issues of dyslexia.
Contact Info:
410-296-0232
40 York Rd, Baltimore, MD, 21204

National Mental Health America
Is the country's leading nonprofit dedicated to helping all people live mentally healthier lives. Through advocacy, public education, and the delivery of programs and services.
Contact Info:
800-969-6642
2000 N. Beauregard Street, Alexandria, VA, 22311

American Lung Association
Organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research.
Contact Info:
800-548-8252
55 W. Wacker Drive, Chicago, IL, 60601

Providing Relief for Autistic Youth
Provides information and referrals for: financial and family support, referrals for therapies, family training, CPR training, and information on having an individual with an autism spectrum disorder, also autism awareness training for emergency service providers. (Washington County- Online, hotline)Providing Relief for Autistic Youth Inc.
Links to More Info:
Contact Info:
240-310-9112


Syndromes Without a Name
A non-profit organization that offers support, information and advice to families of children living with a syndrome without a name. Often described as; undiagnosed syndrome, unknown diagnosis, or mystery diagnosis.
Contact Info:
888-880-7926
1745 Lorna Ln, Otsego, MI, 49078

C.LA.S.S. Kids (Children’s Liver Support Services)
(Children’s Liver Support Services)- An organization that addresses the emotional, educational and financial needs of families with children affected by liver disease and transplantation.
Links to More Info:
Contact Info:
877-679-8256


Kabuki Syndrome
Act as a source of information on Kabuki syndrome, facilitates networking amongst families and professionals, and supports research activities.
Links to More Info:


National Organization of Rare Diseases
-(NORD)Is dedicated to helping Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.
Links to More Info:
Contact Info:
202-588-5700
1779 Massachusetts Avenue, Washington, DC, 20036

Feeding Tube Awareness Foundation
Dedicated to providing parents and caregivers with the information needed for day-to-day life with a tube fed child.


Orphanet
Database of Rare/Genetic disorders.


Autism Society of Howard County
Serves individuals on the autism spectrum, their families, and their communities by providing information, support, and advocacy; by promoting awareness of autism that values the dignity and uniqueness of each individual; and by working to improve the quality of and access to services and to educational opportunities.
Links to More Info:
Contact Info:
410-290-3466
10280 Old Columbia Road, Columbia, MD, 21046

Complex Child E-Magazine
A monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials.


Special Needs.com
Provides expert editorial contributors and thousands of vital articles that help Special Needs families successfully navigate raising a special needs child.


Disability Information
List of information for those with or caring for someone with a disiability.


Mid-Shore Mental Health Systems, Inc
Improve the provision of mental health services for residents of Caroline, Dorchester, Kent, Queen Anne's and Talbot Counties through effective coordination of services in collaboration with consumers, family members, providers and community leaders.
Contact Info:
888-407-8018
410-770-4801
28578 Mary’s Court , Easton, MD, 21601

The Mental Health Center of Western Maryland
Provides the highest standard of preventative, therapeutic and rehabilitation services. We serve adults, children, adolescents and their families.
Links to More Info:
Contact Info:
301-791-3045
1180 Professional Court, Hagerstown, MD, 21740

Frederick County Department of Health
Each local health department administers and enforces State, county and municipal health laws, regulations, and programs. Public health programs tailored to community needs provide preventive care; immunizations; health education; drug and alcohol abuse counseling; and rabies and communicable disease prevention. Information about these and all other health-related state programs may be found by contacting local health departments.
Contact Info:
301-600-1029
350 Montevue Lane , Frederick, MD, 21702

Harford County Department of Health
Each local health department administers and enforces State, county and municipal health laws, regulations, and programs. Public health programs tailored to community needs provide preventive care; immunizations; health education; drug and alcohol abuse counseling; and rabies and communicable disease prevention. Information about these and all other health-related state programs may be found by contacting local health departments.
Contact Info:
410-838-1500
120 S. Hays Street, Bel Air, MD, 21014

Children’s Cancer & Blood Foundation
he Children's Cancer & Blood Foundation (CCBF), through its support of the Division of Pediatric Hematology and Oncology, has created a standard of excellence in the treatment of children with chronic, life-threatening blood disorders since 1952. We are the oldest and largest charitable organization in the U.S. dedicated to the care of children with cancer and blood disorders. Over the years, CCBF has helped the Division grow into one of the most comprehensive programs of its kind.
Contact Info:
212-297-4336
333 East 38th Street , New York, NY, 10016

Children's Disabilities Information
Essential articles and resources empower parents of children with disabilities and special needs.


Little Hearts, Inc.
A national organization providing support, education, resources, networking, and hope to families affected by congenital heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect.
Contact Info:
866-435-4673


National Human Genome Research Institute
Information on genetics, rare diseases, research studies and funding grants for medications for rare disorders.
Links to More Info:
Contact Info:
301-402-0911
31 Center Drive, Bethesda, MD, 20892

Baltimore Chesapeake Autism Society
A volunteer organization founded in 1976. We were created to help serve Maryland families of children and adults with autism spectrum disorders. Our organization provides information, advocacy and support for families and individuals with autism.
Contact Info:
410-655-7933


Lauren D. Beck Sickle Cell Foundation
To promote the knowledge and understanding of Sickle Cell Disease as a health crisis and to advocate for people who are living with the disease. And to inform and educate the community about Sickle Cell Disease and Trait. To actively advocate for people who are living with the disease. Information on iHomes program for sickle cell.
Links to More Info:


Oley Foundation
Enriches the lives of those requiring home IV & tube feeding through education, outreach, & networking
Links to More Info:
Contact Info:
518-262-5079
43 New Scotland Ave, Albany, NY, 12208

About Kids GI
On this site you will find support and information about digestive disorders in kids and teens.
Contact Info:
888-964-2001


Gastro Kids
Children's Digestive Health Information for Kids and Parents. Millions of children are living with pediatric digestive and nutritional disorders. GastroKids provides easy to understand information about the treatment and management of these pediatric digestive conditions for children and parents. We welcome you to explore GastroKids to learn more about pediatric digestive disorders, how they are diagnosed, the treatment and management of conditions, and our patient and parent resources.


Brain Injury Association of Maryland
We are a group of individuals and organizations dedicated to improving the lives and futures of Marylanders affected by brain injury. Since being founded by a small group of family members of individuals with brain injury in 1983, we have grown to become the premier source of information, education, advocacy, and hope for the brain injured community in Maryland.
Links to More Info:
Contact Info:
410-448-2924
2200 Kernan Drive, Baltimore, MD, 21207

Children and Adults with Attention-Deficit/Hyperactive Disorder
The Maryland Chapters of CHADD bring together families and adults with AD/HD, educators and health care professionals. If you or a family member has been diagnosed with attention deficit hyperactivity disorder and you live in Maryland, then this is the place for you. The chapters hold monthly educational programs with local experts, support groups for parents and support groups for adults with AD/HD.
Links to More Info:


Community Services for Autistic Adults and Children
Community Services for Autistic Adults and Children (CSAAC) is a private, non-profit agency which provides direct services to children and adults with autism across the lifespan. CSAAC’s mission is “to enable individuals with autism to reach their highest potential and contribute as confident individuals to their community.”
Links to More Info:
Contact Info:
240-912-2220
8615 East Village Avenue , Montgomery Village, MD, 20886

CASANA(Childhood Apraxia of speech association of north america)
To strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech.
Contact Info:
412-343-7102
416 Lincoln Avenue , Pittsburgh, PA, 15209

Dyslexia Tutoring Program, Inc.
The mission of the Dyslexia Tutoring Program is to teach low-income children and adults with dyslexia or a language-based learning difference to read. This is accomplished through a professional screening assessment and tutoring by volunteers whom we have trained in the Orton-Gillingham method of reading, writing, and spelling.
Links to More Info:
Contact Info:
410-889-5487
711 W. 40th Street , Baltimore, MD, 21211

Autism Speaks
Autism Speaks is the nation's largest autism science and advocacy organization. The program's goal is to change the future of individuals who are impacted by autism spectrum disorders. Autism Speaks is devoted to brining the autism community together to address this disorder that is on the rise, and to do everything possible to raise public awareness, raise funds for research, and give hope to everyone who is impacted by autism.
Links to More Info:
Contact Info:
888-288-4762
1 East 33rd Street, New York, NY, 10016

New Heights Center
The mission of New Heights Center for dyslexia learning is to create an opportunity for adults and/or children to develop multi-sensory abilities to self-direct, self-check, and self-correct their performance in executive function skills, reading, spelling, comprehension, and/or math. Through the intensive stimulation and strengthening of cognitive learning PATHWAYS, the client acquires life skills, which measurably enhance academic and work place performance. Learning success enhances self-esteem and actualizes the client's potential.
Contact Info:
410-821-8808
7604 York Road , Towson, MD, 21204

Autism Source
Search nationwide autism-related services and supports by loaction or service type. The Autism Source Resource Database, created in 2004, is the most comprehensive database of its kind. The Autism Society strives to offer only credible and reliable resources to our constituents; therefore we have employed our nationwide network of chapters and collaborated with other autism organizations and professionals throughout the U.S.
Contact Info:
800-328-8476
4340 East-West Hwy, Bethesda, MD, 20814

Center for Autism and Related Disorders at Kennedy Krieger Institute
CARD combines research, clinical (assesment and intervention) services, as well as community outreach and training to help improve the lives of individuals with autism spectrum disorders, their families, and the community who cares for them. CARD endorses a flexible approach to treatment, adjusting the core set of methods used and goals of intervention to meet the needs of each child and his or her family.
Contact Info:
443-923-7630
3901 Greenspring Avenue, Baltimore, MD, 21211

Rise for Autism
Provides community and professional awareness, family support and resources, financial assistance, and a lifetime continuum of therapeutic services to promote confident, competent individuals with Autism Spectrum and Related Disorders.
Links to More Info:
550 M Ritchie Highway, Severna Park, MD, 21146

Kidney Kids
a non-profit 501(c)(3) organization devoted to supporting children with kidney diseases and illnesses as well as their families. We are striving to lessen the physical, emotional and financial impacts of living with a kidney disease or illness for children and families in the Greater D.C. Metropolitan area.
Links to More Info:
Contact Info:
703-620-0939
10855 Weisiger Lane, Oakton, VA, 22124

Unique
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide.


Danielle's Foundation
Danielle’s Foundation is a comprehensive support and resource center for parents, caregivers, and loved ones of children with cerebral palsy and brain injury.
Contact Info:
800-511-2283


Continuum Autism Spectrum Alliance
Continuum Autism Spectrum Alliance addresses the needs of those who present with signs or symptoms associated with Autism Spectrum Disorder and related developmental disabilities, and we’re unique in our ability to provide a seamless continuum of care starting with diagnosis and extending through assessment and treatment.
Links to More Info:
Contact Info:
800-828-5659
1651 Old Meadow Road, McLean, VA, 22102

Children & Youth with Special Health Care Needs Program
The Children and Youth with Special Health Care Needs (CYSHCN) Program is a resource for families, health care providers, and communities. The CYSHCN Program works to improve systems of care for anyone from birth through age 21 with a chronic physical, developmental, behavioral or emotional illness or condition. Who need or use of specialized therapies or services such as speech, occupational, physical therapy or other prescribed therapies; need or use of counseling; or a functional limitation such as a physical, emotional or mental disability. The program is staffed by a Registered Nurse who is available Monday through Friday.
Contact Info:
410-778-2547
400 High Street, Chestertown, MD, 21620

Sickle Cell Association of the National Capital Area, Inc.
The Sickle Cell Association of the National Capital Area, Inc. (SCANCA, Inc.) is a community-based organization serving the District of Columbia, Montgomery and Prince Georges Counties, and Northern Virginia. Our focus is to educate individuals about the management of sickle cell disease.Our education programs include workshops, health fairs, client support groups and publications that inform the community, including health and social professionals about sickle cell disease.
Links to More Info:
Contact Info:
202-271-5733


Sickle Cell Information Center
The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources.It is the mission of our organizations to provide world class compassionate care, education, counseling, and research for patients with sickle cell disease.


National Institutes of Health
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services , is the nation’s medical research agency—making important discoveries that improve health and save lives.
Links to More Info:
Contact Info:
301-496-4000
9000 Rockville Pike, Bethesda, MD, 20892

EHDI-PALS
a web-based link to information, resources, and services for children with hearing loss. At the heart of EHDI-PALS is a a national web-based directory of facilities that offer pediatric audiology services to young children who are younger than five years of age. The facilities included in this directory have licensed pediatric audiologists who provide these services.
Links to More Info:


Mucolipidosis IV Foundation
ML4 is a genetic disease causing mental retardation, retinal degeneration, and limited lifespan. The mission of the Foundation is to fund, promote, and support medical research dedicated to developing treatments and a cure for ML4.
Contact Info:
877-454-5965
719 East 17th Street, Brooklyn, NY, 11230

Sickle Cell Kids
A website geared for kids to teach them about Sickle cell disease


Autism Classroom
This site is designed to provide assistance to educators who are educating children with autism and since parents are a child's first teacher, this site is for you too! On this site you will find information about teaching children with autism and developmental disabilities, running a successful autism classroom, setting up spaces in the home and community for a child with autism, locate books and apps helpful in educating children with autism and find training options.
Links to More Info:


Children's Hospital of Philadelphia
Since its start in 1855 as the nation's first hospital devoted exclusively to caring for children, The Children's Hospital of Philadelphia has been the birthplace for many dramatic firsts in pediatric medicine. The Hospital has fostered medical discoveries and innovations that have improved pediatric healthcare and saved countless children’s lives.
Links to More Info:
Contact Info:
800-879-2467


Mended Little Hearts
Mended Little Hearts is a program of the Mended Hearts Inc., a non-profit, volunteer-based organization providing hope, help and healing to heart patients and their families since 1951. The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.


The Children's Heart Foundation
The goal of The Children’s Heart Foundation is to bring health, hope and happiness to children impacted by congenital heart defects, the number one birth defect in the United States. We accomplish this goal by funding the most promising research to advance the diagnosis, treatment and prevention of congenital heart defects.
Links to More Info:
Contact Info:
888-248-8140


Saving Little Hearts
Saving Little Hearts is dedicated to helping children with congenital heart defects and their families by providing emotional assistance and educational information primarily through the distribution of Care Packages.
Links to More Info:
Contact Info:
865-748-4605


Maryland Sickle Cell Disease Association
The Maryland Sickle Cell Disease Association, Inc. (MSCDA)seeks to work collaboratively with patients, families, healthcare providers, federal and state agencies and other community based organizations to promote advocacy, education, research and excellent healthcare delivery.
Links to More Info:
Contact Info:
410-465-4822
8775 Centre Park Drive, Columbia, MD, 21045

American Sickle Cell Anemia Association
The American Sickle Cell Anemia Association (ASCAA) is a 501(c) 3 organization that provides quality and comprehensive services through diagnostic testing, evaluation, counseling and supportive services to individuals and families at risk for Sickle Cell Disease and it's variants.
Links to More Info:
Contact Info:
216-229-8600


Maryland/DC Hands and Voices
Hands & Voices is dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We're a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children.
Contact Info:
240-780-2280


HealthyChildren.org
HealthyChildren.org is the only parenting Web site backed by 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.Whether you're looking for general information related to child health or for more specific guidance on parenting issues, you've come to the right place.
Links to More Info:


The Dysautonomia Youth Network of America, Inc.
Founded in 1999, the Dysautonomia Youth Network of America, Inc. (DYNA) is the first and only 501(c) (3) non-profit organization in existence specifically dedicated to childhood/adolescent/young adult onset dysautonomia conditions. While our office is based in the US, our services are open to the world.
Links to More Info:


Autism Support group of Southern Maryland
The Autism Spectrum Support Group of Southern Maryland offers support and information to families and caregivers of people with Autism Spectrum Disorders in St. Mary's, Calvert, and Charles Counties, MD. Meetings are the 3rd Wednesday of the month 6:30 - 8:00 p.m.
Links to More Info:
Contact Info:
240-561-8860


Baltimore County Family Navigator
The Baltimore County Family Navigator service is a free service offered to parents and caregivers of children with intensive needs related to behavioral/mental health or developmental disabilities. Family Navigators are experienced parents or caregivers of special needs children who have navigated through systems of care on behalf of their children.
Links to More Info:
Contact Info:
410-252-4700
2300 Dulaney Valley Road, Timonium, MD, 21093

The Autism Project
The Autism Project, Inc. is a non-profit organization serving students on the Autism Spectrum in Northern Calvert Co. Maryland. We work with students on all levels of the spectrum upon initial diagnosis through adulthood.We pride ourselves on adapting to the ever evolving needs of our students.
Links to More Info:
Contact Info:
410-286-8240


National Multiple Sclerosis Society
We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
Links to More Info:


Hunter's Hope
Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses.
Links to More Info:
Contact Info:
716-667-1200
6368 West Quaker Street, Orchard Park, NY, 14127

NBS connect
NBS Connect serves as an internet-based support network for parents, guardians and individuals with inborn errors of metabolism. NBS Connect will capture and analyze information related to inborn errors of metabolism in an effort to assess gaps in service, access to care and to develop best standards of practice for clinical management and connect families to research opportunities. NBS Connect strives to improve the quality of care of individuals with inherited metabolic disorders (IMDs).
Contact Info:
404-778-0553


NICU Helping Hands
It is our mission to provide comprehensive support programs and resources to parents of premature infants not only during their stay in the NICU but during and after their transition home. We are glad you have found us and we are anxious to provide you and your family members the support and assistance you need.
Links to More Info:
Contact Info:
817-584-1437
301 Commerce Street, Fort Worth, TX, 76102

Learning Disabilities Association of Montgomery County, MD, Inc.
Creating greater awareness of learning disabilities and ADHD among parents, professionals and the general public. Improving education, employment and social opportunities for persons with learning disabilities. Educating parents and young adults for their role as advocate/self-advocate. Connecting parents and young adults with learning disabilities to community resources.
Links to More Info:
Contact Info:
301-933-1076


infantsee
InfantSEE®, a public health program, managed by Optometry Cares® - the AOA Foundation, is designed to ensure that eye and vision care becomes an essential part of infant wellness care to improve a child's quality of life. Under this program, participating optometrists provide a comprehensive infant eye assessment between 6 and 12 months of age as a no-cost public service.
Links to More Info:
Contact Info:
888-396-3937


Kanetix.ca
Learning disabilities commonly manifest in difficultly with information processing. They are the result of a neurobiological disorder, and can effect a host of areas including memory, reading, writing and math abilities. Learning disabilities can also impede speech, reasoning, social behavior, physical coordination, organization and meta cognition.


Small Steps in Speech
Small Steps in Speech assists children with speech and language disorders by funding supplemental therapies and treatments for individuals as well as grants to charitable organizations who serve children with communicative disorders. Our goal is to give children the chance to better express themselves in the world in which we live.
Links to More Info:
Contact Info:
888-577-3256


FASD Center for Excellence
Welcome to the SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence Web site. The FASD Center is a Federal initiative devoted to preventing and treating FASD. This Web site provides information and resources about FASD.
Contact Info:
866-786-7327
2101 Gaither Road, Rockville , MD, 20850

Mitoaction
MitoAction's mission is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.
Links to More Info:
Contact Info:
888-648-6411


Grahams Foundation
We empower parents of premature babies through support, advocacy and research to improve outcomes for their preemies and themselves. In addition to our care package programs, we have more than 20 trained parent mentors available 24/7 via email, phone, and text and the market-leading app for preemie parents, MyPreemie. We also recognize the courage and commitment parents of preemies demonstrate as they care for and advocate for their babies and children through efforts such as Parents of Preemies Day.
Links to More Info:
Contact Info:
888-466-2948
1205 Louisiana Ave, Perrysburg, OH, 43552

Little People of America
Little People of America (LPA) is a nonprofit organization that provides support and information to people of short stature and their families. LPA is only able to continue our work with support from members, friends and family.
Links to More Info:


Molly Bear Foundation
The mission of the Molly Bear Foundation, named in loving memory of Molly Elizabeth Brown, is to provide supplemental financial support to families raising children with Trisomy 18 and the organizations and professionals that care for them. We strive to promote a caring, compassionate community where families traveling this challenging road can find some comfort and relief in knowing we can help fund some of the care and equipment their insurance may not cover.
Contact Info:
609-228-8575


Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease. Our resources assist people who have MS, their families and caregivers, regional support groups, and healthcare professionals.
Links to More Info:
Contact Info:
888-673-6287
6520 North Andrews Ave., Ft. Lauderdale, FL, 33309

Seedlings
Seedlings Braille Books for Children is a 501(c)3 non-profit, tax-exempt organization dedicated to increasing the opportunity for literacy by providing high quality, low cost braille books for children.
Links to More Info:
Contact Info:
800-777-8552


Cerebral Palsy Guide
The people working behind the scenes on the Cerebral Palsy Guide have strived to create an easy-to-use, informative website that provides solutions for families. It is our hope that Cerebral Palsy Guide can help parents of children with cerebral palsy find peace, healing and happiness.
Contact Info:
888-908-4261
3208 E. Colonial Drive , Orlando, FL, 32803

Described and Captioned Media Program
Our mission is to promote and provide equal access to communication and learning through described and captioned educational media.The ultimate goal of the DCMP is for accessible media to be an integral tool in the teaching and learning process for all stakeholders in the educational community, including students, educators and other school personnel, parents, service providers, businesses, and agencies.
Links to More Info:
Contact Info:
800-237-6213
800-237-6819
1447 E. Main Street, Spartanburg, SC, 29307

Dandy-Walker Alliance
Finding out you or your child has Dandy-Walker is a trying time for individuals and families. Fortunately the Dandy Walker Alliance is here to help. If you're looking for support, need advice, or just need someone to talk to reach out to us.
Contact Info:
877-326-3992
10325 Kensington Pkwy, Kensington, MD, 20895

Down Syndrome Network of Montgomery County
The Down Syndrome Network of Montgomery County (DSNMC), Maryland is an organization that provides support to families of children, teens and adults with Down syndrome. DSNMC empowers and supports individuals with Down syndrome, their families and the community through education, information, public awareness and advocacy.
Contact Info:
301-979-1112


Epilepsy Foundation
The Epilepsy Foundation,has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.
Links to More Info:
Contact Info:
800-332-1000


Prader-Willi Syndrome Association
PWSA (USA) was organized in 1975 to provide support for individuals, families, professionals and organizations and to be a resource for education and information about Prader-Willi syndrome. The association is governed by a national board of directors. The board works in conjunction with the paid and volunteer staff of the national headquarters, and a network of chapters throughout the country to direct the organization's operations and serve its members.
Contact Info:
800-926-4797


Mother To Baby
MotherToBaby, a service of the non-profit Organization of Teratology Information Specialists, is dedicated to providing evidence-based information to mothers, health care professionals, and the general public about medications and other exposures during pregnancy and while breastfeeding.
Contact Info:
866-626-6847


Autism FYI
Our mission is to foster community support and inclusion of those on the Autism Spectrum, through a registry that provides a means of early identification, location and access to important information in case of emergency.
Links to More Info:
Contact Info:
855-487-0777
301-367-1042
7507 Old Chapel Drive, Bowie, MD, 20715

Maryland Association of Core Service Agencies
The Maryland Association of Core Service Agencies (MACSA) is the non-profit organization comprised of Maryland’s 19 Core Service Agencies. The Core Service Agencies are the local Mental Health Authorities responsible for planning, managing, and monitoring public mental health services at the county level. There is a Core Service Agency to be of assistance in every county in the state and in Baltimore City. separator image
Links to More Info:
Contact Info:
301-682-9754
22 South Market Street, Frederick, MD, 21701

Cerebral Palsy Guidance
From information on cerebral palsy symptoms to financial assistance to daily living articles, CerebralPalsyGuidance.com covers all aspects of cerebral palsy. And all of our information is thoroughly researched and cited.


Get Connected
The Get Connected Family Resource Center is a free service for Carroll County families. We assist familes in learning, navigating, and managing systems of care as they become empowered advocates for their children. We provide the following: Information and Referral Family Support Coordination of Services Community Outreach and Support Follow-up
Links to More Info:
Contact Info:
410-871-0008
866-664-0008
255 Clifton Blvd, Westminster, MD, 21157

Sisters By Heart
We are a volunteer organization that strives to help moms with newly-diagnosed babies. We provide care packages to make your stay in hospital a little easier. We also provide information and links to many resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and who understand what you are going through. We are here to help!
Links to More Info:


Maryland Fetal Alcohol Spectrum Disorder Coalition (FASD)
An FASD Work Group was convened in July 2004 by DHMH and the Governor’s Office on Crime Control and Prevention. DHMH assumed sole responsibility for leadership and staffing of the work group in December 2004.
Links to More Info:


Network of Care
This Web site is a resource for individuals, families and agencies concerned with behavioral health. It provides information about behavioral health services, laws, and related news, as well as communication tools and other features. The Network of Care for Behavioral Health, provided by the Allegany County Mental Health System's Office; the Garrett County Core Service Agency, and the Washington County Mental Health Authority.
Links to More Info:


Mitomedical
To identify state-of-the-art practices for optimizing mitochondrial function developed by physicians at leading university medical centers and to make these widely available in a form that all individuals, even those with high sensitivity to taste and texture, could take easily.
Contact Info:
888-607-5958


Lindamood-Bell Learning Processes
Lindamood-Bell Learning Processes is a research validated remediation company that helps children and adults with reading and comprehension weaknesses. Our intensive one on one sensory cognitive instruction has proven to be successful with children with ASD as well as children and adults with dyslexia and other reading impairments. Our company has over 60 learning centers world wide and is accredited by Advanced Ed.
Links to More Info:
Contact Info:
800-233-1819


TCS Associates
TCS offers a full suite of innovative accessible services and solutions to ensure that employees with disabilities, students and individuals are able to perform the essential functions of their positions, have equal access to technology in the workplace and enjoy equal benefits and privileges of employment and the pursuit of their personal or professional goals.
Links to More Info:
Contact Info:
855-862-4586
240-428-1820
7361 Calhoun Place, Rockville, MD, 20855

Cerebral Palsy Group
Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP.
Links to More Info:


Alyssa V. Phillips Foundation
The purpose of the Alyssa V. Phillips Foundation is to support individuals with Cerebral Palsy (“CP”) with a focus on assisting children with CP, the families of children with CP, or any individual impacted by CP in maximizing independence.
Links to More Info:


Generation rescue
Generation Rescue curated a movement dedicated to providing comprehensive treatment opportunities to autism families. As an innovative and results-oriented organization, we bridge the gap between philanthropy and expert-driven services by collaborating with like-minded stakeholders. Together, our vision fosters a sense of belonging and hope for future generations.
Links to More Info:


My Goal
MyGOAL Autism is a 501 c(3) non-profit organization with a vision to restore lives and families affected by Autism through Education and Empowerment.
Links to More Info:
Contact Info:
877-886-9462


The S.P.A.R.K.S. Group
The S.P.A.R.K.S. Group is an ABA service provider located in Laurel, MD that develops programs for individuals with Autism Spectrum Disorder (ASD) that will allow them to reach their highest potential. We develop individualized treatment plans based on the principles of Applied Behavior Analysis (ABA) and Verbal Behavior (VB). We strive to provide Autism education, and services to all communities in need.
Links to More Info:
Contact Info:
240-297-3550
312 Marshall Avenue, Laurel, MD, 20707

American Council for the Blind
The American Council of the Blind strives to increase the independence, security, equality of opportunity, and quality of life, for all blind and visually-impaired people.
Links to More Info:
Contact Info:
800-424-8666


American Foundation for the Blind
The mission of the American Foundation for the Blind is to create a world of no limits for people who are blind or visually impaired. We mobilize leaders, advance understanding, and champion impactful policies and practices using research and data.
Links to More Info:


Library of Congress for the Blind and Physically Handicapped
National Library Service (NLS) is a free braille and talking book library service for people with temporary or permanent low vision, blindness, or a physical disability that prevents them from reading or holding the printed page. Through a national network of cooperating libraries, NLS circulates books and magazines in braille or audio formats, delivered by postage-free mail or instantly downloadable.
Contact Info:
888-657-7323


National Autism Association
The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.
Contact Info:
877-622-2884


National Down Syndrome Society
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
Links to More Info:
Contact Info:
800-221-4602


National Down Syndrome Congress
The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.
Contact Info:
800-232-6372


National Family Association for Deaf-Blind
We believe that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of their community. NFADB is the largest national nonprofit organization serving families of individuals who are deaf-blind.
Links to More Info:
Contact Info:
800-255-0411


National Autism Resources
National Autism Resources Inc. is a global leader in providing cost effective, research based therapeutic tools that meet the needs of people on the autism spectrum across their lifespan.
Links to More Info:
Contact Info:
877-249-2393


Charcot-Marie-Tooth Association
Our mission … to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. Our vision … a world without CMT.
Links to More Info:
Contact Info:
800-606-2682


Montgomery County Federation of Families for Children's Mental Health
A charitable, non-profit organization run by family members who have children with emotional, behavioral, or mental challenges. We help other family members who are raising children with similar challenges.
Links to More Info:
Contact Info:
301-879-5200
13321 New Hampshire Avenue , Silver Spring, MD, 20904

Go back to the search page