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Maryland Department Of Health And Mental Hygiene

Children And Youth With Special Health Care Needs

Accessible Resource Locator

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For assistance call us at 1-800-638-8864

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We found 131 results matching your search criteria 
Arc of Baltimore
Dedicated to helping people with developmental disabilities make the most of their potential. Our innovative services support more than 4,000 adults and children with developmental disabilities and their families in Baltimore City and Baltimore County. Our programs help families provide needed care and opportunity for their children, and individuals are able to live and work in the community.
Links to More Info:
Contact Info:
410-296-2272
7215 York Road, Baltimore, MD, 21212

Easter Seals of Greater Washington and Baltimore Region
The program offers a variety of support services for families who have a child with a disability and/or chronic illnesses or special need. Through a network of trained adult and senior volunteers The Program provides a range of support and enriching experiences for children with special needs and provides critically needed respite support to their families. Programs vary by county depending on availability of volunteers.
Links to More Info:
Contact Info:
800-886-3771
301-588-8700
1420 Spring Street , Silver Spring, MD, 20910

ARC of Prince George’s County
Offers a lifetime of support, understanding, and opportunities for people with developmental disabilities and their families. Providing support through a variety of programs and services that match each person or family's individual needs, we ensure that people with developmental disabilities are given the skills, access, and information they need to fully participate as citizens in their communities.
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Contact Info:
301-925-7050
1401 McCormick Rd, Largo , MD, 20774

Arc of Montgomery County
Serves individuals, families and employers affected by intellectual and developmental disabilities.
Links to More Info:
Contact Info:
301-984-5777
11600 Nebel Street, Rockville, MD, 20852

Fragile X Support group
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X.
Contact Info:
240-838-0115
240-246-3503


Lollipop Kids Foundation
Combat social stigmas, ease the financial burden placed on these families, offer emotional support and provide a brief respite so that every child with a disability has access to a hope and a future.
Links to More Info:
Contact Info:
202-640-2035


McClean Bible Church
Access Ministry has a holistic approach to care for individuals with disabilities and their families by providing spiritual, physical, and emotional care. We accomplish this through an incredibly passionate staff and core group of volunteers with servant hearts.
Links to More Info:
Contact Info:
703-639-2000
8925 Leesburg Pike , Vienna, VA, 22182

St. Vincent’s Villa
Provides comprehensive therapeutic services to children whose behavioral and emotional needs have not responded to interventions and services provided at home or in the community.
Contact Info:
410-252-4000
2600 Pot Spring Rd, Timonium, MD, 21093

Maryland School for the Deaf
Available to deaf and hard of hearing Maryland children from birth to age 21. Serving children across a broad spectrum of intellectual and physical abilities, including those with mild to severe additional disabilities and is FREE to Maryland residents.
Links to More Info:
Contact Info:
301-360-2005
240-575-2975
101 Clarke Place, Frederick, MD, 21705

Maryland School for the Blind
A private, statewide resource center providing outreach, school and residential programs to children and youth from infancy to age 21 who are blind or visually impaired including those with multiple disabilities.
Contact Info:
410-444-5000
3501 Taylor Avenue , Baltimore, MD, 21236

Muscular Dystrophy Association
Association's comprehensive services program includes diagnostic and follow-up medical consultations, flu shots, support groups, MDA summer camps for youngsters, a medical equipment program, assistance with equipment repairs and resource referral.
Links to More Info:
Contact Info:
800-572-1717
410-494-7106
8501 LaSalle Road , Towson, MD, 21286

United Cerebral Palsy
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
Links to More Info:
Contact Info:
800-872-5827
1825 K Street NW , Washington, DC, 20006

Children’s Developmental Clinic- Prince George's County
A community service program at Prince George's Community College conducted in cooperation with the College of Health and Human Performance of the University of Maryland, College Park. The clinic provides a special service to children who are experiencing various developmental difficulties such as learning problems, physical fitness/coordination problems, mental retardation, emotional problems, or orthopedic challenges.(Toddlers-thru School age)
Contact Info:
301-546-0519
Prince George’s Community College 301 Largo Road, Largo, MD, 20774

Children’s Developmental Clinic- Baltimore County
The Children’s Developmental Class, sponsored by CCBC’s Division of Business, Social Sciences, Wellness and Education, helps children with special needs manage their unique challenges. Children are mentored in the areas of motor development, academic, and social skills.
Contact Info:
443-840-1387
7106B Ridge Road, Rosedale, MD, 21237

Kennedy Krieger
Internationally recognized institution dedicated to improving the lives of children and adolescents with pediatric developmental disabilities and disorders of the brain, spinal cord and musculoskeletal system, through patient care, special education, research, and professional training.
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Contact Info:
888-554-2080
707 North Broadway, Baltimore, MD, 21205

Mount Washington Pediatric Hospital
MWPH continues to provide the highest quality pediatric healthcare services in a caring, nurturing and family-centered environment. Our modern facilities offers inpatient and outpatient care for infants and children with rehabilitation and other complex medical needs.
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Contact Info:
410-578-8600
1708 West Rogers Avenue , Baltimore, MD, 21209

Starlight Children’s Foundation
Helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
Contact Info:
202-293-7827
2020 K Street, NW, Suite 600 , Washington, DC, 20006

Casey Cares Foundation
Provides ongoing, uplifting programs with a special touch to critically ill children and their families.
Contact Info:
443-568-0064
3918 Vero road, Baltimore, MD, 21227

Caring Bridge
Provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.


Mommies of Miracles
A growing international peer-driven support group of mothers who have children of any age (infant-adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities. (online)


Sibling Support Project
A national website with the purpose of increasing the peer support and information opportunities for brothers and sisters of people with special needs and to increasing parents' and providers' understanding of sibling issues. (online)


Cochlear Community
A social networking site that can increase your/ your child's circle of friends. Our objective is to help you, and your family, connect with other families who have had similar experiences in managing hearing loss and finding treatment options.


A.I. Dupont Hospital for Children
Our 200-bed teaching hospital is integrated with the Nemours Children’s Clinic, which provides care in more than 30 specialties of pediatric medicine, surgery, and dentistry. We also offer outpatient specialty care, pediatric primary care, neonatal care, and inpatient pediatric care at a variety of locations in Delaware, Pennsylvania, and New Jersey.
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Contact Info:
302-651-4000
1600 Rockland Road , Wilmington, DE, 19803

Parents of Children with Down Syndrome
A group of about 60 families who live in Anne Arundel County. We have periodic meetings from September to May and two social events per year in the summer and winter. We have a newsletter for members.
Contact Info:
410-349-0185


Juvenile Diabetes Research Foundation
JDRF is at the center of the global T1D community— leading the effort to coordinate and galvanize the many key constituents—families, businesses, government, researchers, and other organizations— in the quest to cure T1D.
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Contact Info:
410-636-8080
825 Hammonds Ferry Road, Linthicum, MD, 21090

The Autistic Children’s Support Group of Worchester County
An all-volunteer non-profit organization dedicated to providing parent-to-parent support for families living with Autism in Worcester County, MD.


Diabetes Prevention and Education
A combination of free education, support and prevention services taught by staff from Atlantic General Hospital and Worcester County Health Department including a Certified Diabetes Educator/Registered Nurse, Registered Dietitian, and an American College of Sports Medicine Certified Exercise Specialist. Support group Meets 3rd Wednesday of every month, 1-2 pm, Snow Hill Library and 3rd Thursday of every month, 1-2 pm, Pocomoke Library.
Contact Info:
410-632-1100
6040 Public Landing Road, Snow Hill, MD, 21863

Spina Bifida association of the Mid-Atlantic
an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. This newly formed organization serves individuals with Spina Bifida and their families in the Washington, DC Metropolitan Area.
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Contact Info:
866-938-3407
4590 MacArthur Blvd. , Washington, DC,

Anne Arundel County Autism Support Group
Our group is dedicated to the advocacy and developmental needs of children who have been diagnosed with Asperger Syndrome. We meet monthly on the 3rd Wednesday of each month from 7-9pm (during the school year and excluding December. Only contact info is online)


D.A.T.E.S. (Differently-abled Adolescents Together for Emotional Support
A support group for preteens and teens with special needs aged 12-21 and living in Caroline County.
Contact Info:
410-479-3609
303 Sharp Road , Denton, MD, 21629

Madison’s Foundation
We are the only website in the world that connects parents whose children have the same rare disease. We understand how important it is to have access to medical information and to get in touch with other parents dealing with your same issues(online)
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Youth M.O.V.E.
A youth led statewide organization dedicated to helping create positive change in the lives of young people and the systems (Child Welfare, Juvenile Services, and Mental Health) that serve them throughout the state of Maryland.
Links to More Info:
Contact Info:
800-580-6199


National Parent Helpline
Open to parents and caregivers of children and youth of all ages. We will listen to you, offer emotional support, help you problem-solve, support you in creating your own solutions, encourage you to take care of yourself, work with you to get connected to local services, explore new resources for your family, and help you build on your own strengths and continue to be a great parent.
Links to More Info:
Contact Info:
855-427-2736


SEEC(Seeking Equality, Empowerment, and Community for People with Developmental Disabilities)
A nonprofit organization providing customized, community-based supports to help individuals with developmental disabilities achieve their unique version of The American Dream. People we support face the challenges of intellectual disabilities, autism, cerebral palsy and other disorders requiring support for daily living. SEEC staff provide assistance to help each person direct the course of his or her services towards attainment of personal goals for a well-rounded life including, employment, education, leisure activities, good health, and friendships. All services are provided in the community and are individualized to meet each person’s unique needs, desires and aspirations.
Links to More Info:
Contact Info:
301-576-9000
8905 Fairview Road , Silver Spring, MD, 20910

Autism Society of America
Increases public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Contact Info:
800-328-8476
4340 East-West Hwy, Bethesda, MD, 20814

Columbia Lighthouse for the Blind
Supports academic learning, independent living skills and social skill development as children grow and is resource for parents, families and schools.
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The Leukemia and Lymphoma Society
Here you can find ways to participate in local events supporting our research, patient support and information programs. There are many ways to get involved.
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Contact Info:
443-471-1600
100 Painters Mill Road , Owings Mills , MD, 21117

Maryland Lyme Disease
Dedicated to educating the public concerning the prevention, diagnosis and treatment of Lyme and tick-borne diseases.
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International Rett Syndrome Foundation
Funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
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Contact Info:
800-818-7388
4600 Devitt Drive, Cincinnati, OH, 45246

National Mental Health America
Is the country's leading nonprofit dedicated to helping all people live mentally healthier lives. Through advocacy, public education, and the delivery of programs and services.
Contact Info:
800-969-6642
2000 N. Beauregard Street, Alexandria, VA, 22311

Providing Relief for Autistic Youth
Provides information and referrals for: financial and family support, referrals for therapies, family training, CPR training, and information on having an individual with an autism spectrum disorder, also autism awareness training for emergency service providers. (Washington County- Online, hotline)Providing Relief for Autistic Youth Inc.
Links to More Info:
Contact Info:
240-310-9112


Syndromes Without a Name
A non-profit organization that offers support, information and advice to families of children living with a syndrome without a name. Often described as; undiagnosed syndrome, unknown diagnosis, or mystery diagnosis.
Contact Info:
888-880-7926
1745 Lorna Ln, Otsego, MI, 49078

C.LA.S.S. Kids (Children’s Liver Support Services)
(Children’s Liver Support Services)- An organization that addresses the emotional, educational and financial needs of families with children affected by liver disease and transplantation.
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Contact Info:
877-679-8256


Kabuki Syndrome
Act as a source of information on Kabuki syndrome, facilitates networking amongst families and professionals, and supports research activities.
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National Organization of Rare Diseases
-(NORD)Is dedicated to helping Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.
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Contact Info:
202-588-5700
1779 Massachusetts Avenue, Washington, DC, 20036

Feeding Tube Awareness Foundation
Dedicated to providing parents and caregivers with the information needed for day-to-day life with a tube fed child.


Family Tree Stress Line
Toll free statewide Parenting Help Line provides information, referrals and support for parents and other individuals in care giving roles, professionals, community members, children adolescents, families, educators and more. The Family Tree staff and trained volunteers are available 24 hours a day, 7 days a week, to provide information in a confidential setting.
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Contact Info:
410-889-2300
800-243-7337
2108 North Charles Street , Baltimore, MD, 21218

Independence Now, Inc
(The center for Independent living)- A nonprofit organization created by and for people with disabilities. We are a resource and advocacy center that promotes independent living and equal access for people with all types of disabilities. Assists residents of Montgomery and Prince George’s Counties.
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Contact Info:
301-277-2839
12301 Old Columbia Pike, Silver Spring, MD, 20904

Arc of Maryland
Offers family and self advocacy leadership programs, training on rights and best practices in the field of developmental disabilities, quality of life surveys, and scholarships for people with disabilities. We provide statewide advocacy leadership at the Maryland General Assembly on behalf of people with intellectual and developmental disabilities.
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Contact Info:
410-571-9320
130 Lubrano Drive, Annapolis, MD, 21401

Arc of Frederick County
assists persons with developmental disabilities and their families to obtain the services they need and want in order to become as independent as possible and to enjoy quality of life within our community.
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Contact Info:
301-663-0909
620A Research Court , Frederick, MD, 21703

The Arc Central Chesapeake Region
Serves Anne Arundel, Caroline, Dorchester, Queen Anne and Talbot counties. Promote respect, create opportunities and advocate for equal rights for all people with intellectual and developmental disabilities.
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Contact Info:
410-269-1883
931 Spa Road, Annapolis, MD, 21401

March of Dimes
Information on healthy pregnancies, prematurity and birth defects.
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Contact Info:
914-997-4488
1275 Mamaroneck Avenue , White Plains, NY, 10605

Autism Society of Howard County
Serves individuals on the autism spectrum, their families, and their communities by providing information, support, and advocacy; by promoting awareness of autism that values the dignity and uniqueness of each individual; and by working to improve the quality of and access to services and to educational opportunities.
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Contact Info:
410-290-3466
10280 Old Columbia Road, Columbia, MD, 21046

Best Buddies Program
A nonprofit dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities.
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Contact Info:
877-632-8339
3500 Boston Street MS-47 , Baltimore, MD, 21224

Catholic Charities
Focuses on building and unifying families, helping children and families achieve healthy social and emotional relationships, and securing special education and behavioral health services that provide the means to achieve self-reliance.
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Contact Info:
410-547-5490
320 Cathedral St., Baltimore, MD, 21201

Disability Coalition of Talbot County
Dedicated to raising public awareness of disability issues and reducing the stigma that impedes recovery of persons with physical, developmental and mental disabilities, and slows their assimilation into the workplace and community.
Links to More Info:
Contact Info:
888-706-9902
410-822-0444
611 B Dutchman's Lane , Easton, MD, 21601

Complex Child E-Magazine
A monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials.


Parenting Special Needs Online Magazine
Provides parents of special needs children, of all ages and stages of life, both information and inspiration. Through Parenting Special Needs On Line Magazine, we've created a world that provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys, of one of life's greatest gifts.


Special Needs.com
Provides expert editorial contributors and thousands of vital articles that help Special Needs families successfully navigate raising a special needs child.


Disability Information
List of information for those with or caring for someone with a disiability.


Exceptional Parent
Provides practical advice and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals who are involved in their care and development.


Queen Anne County’s Department of Health Addiction Services
The Addictions Treatment and Prevention Services offer assessments; individual, group and family counseling; referrals and prevention services for adults and adolescents. Since alcoholism and drug addiction are chronic, progressive, potentially fatal diseases, a personal commitment with the support of community resources helps individuals and their families in this lifelong recovery process. Services are available in two locations. The Centreville office is located in the Nielsen Center, 205 North Liberty Street, Centreville. The contact number for the Centreville site is .
Contact Info:
410-643-7773
410-758-1306
210 White Pine Lane, Stevensville, MD,

National Alliance on Mental Illness
The National Alliance on Mental Illness (NAMI) is the nation's largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. The NAMI organization operates at the national, state and local level.
Links to More Info:
Contact Info:
410-884-8691
877-878-2371
10630 Little Patuxent Parkway, Columbia, MD, 21044

Maryland Youth Crisis 24 hr Hotline
Provides crisis intervention, information, referral, and community outreach throughout the State via the Maryland Youth Crisis Hotline: 24/7 hotline network
Contact Info:
410-767-6500
800-422-0009
201 West Preston Street, Baltimore, MD, 21201

Jewish Community Services
a comprehensive non-profit human service agency of THE ASSOCIATED: Jewish Community Federation of Baltimore. JCS provides a broad range of services that meet the diverse, multi-dimensional needs of individuals and families throughout Central Maryland.
Links to More Info:
Contact Info:
410-466-9200
5750 Park Heights Avenue , Baltimore, MD, 21215

Upper Bay Counseling Services
Provides a broad range of counseling and mental health services to meet every individual's needs. Services in Cecil and Harford Counties in Maryland.
Links to More Info:
Contact Info:
800-467-0304
200 Booth Street , Elkton, MD, 21921

Band-aides and Blackboards
Online stories and poems written for kids about having a medical problem/condition/illness.


Little Hearts, Inc.
A national organization providing support, education, resources, networking, and hope to families affected by congenital heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect.
Contact Info:
866-435-4673


Baltimore Chesapeake Autism Society
A volunteer organization founded in 1976. We were created to help serve Maryland families of children and adults with autism spectrum disorders. Our organization provides information, advocacy and support for families and individuals with autism.
Contact Info:
410-655-7933


Kids as Self Advocates
a national, grassroots project created by youth with disabilities for youth. We are teens and young adults with disabilities speaking out. KASA knows youth can make choices and advocate for themselves if they have the information and support they need. We are leaders in our communities, and we help spread helpful, positive information among our peers to increase knowledge around various issues. We also help health care professionals, policymakers and other adults in our communities understand what it is like to live our lives and we participate in discussions about how to help each other succeed.
Contact Info:
334-230-5441


Lauren D. Beck Sickle Cell Foundation
To promote the knowledge and understanding of Sickle Cell Disease as a health crisis and to advocate for people who are living with the disease. And to inform and educate the community about Sickle Cell Disease and Trait. To actively advocate for people who are living with the disease. Information on iHomes program for sickle cell.
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Misunderstood Minds
Parents, teachers, and students looking for the scientific explanations behind learning differences and strategies to aid success in school can find both on the companion Web site for Misunderstood Minds. The site includes profiles of the students in the documentary, as well as sections on Attention, Reading, Writing, and Mathematics. Interactive activities, called Experience Firsthand, are designed to give site visitors a sense of what it may be like for a student struggling with a basic skill.


New Mobility
New Mobility encourages the integration of active-lifestyle wheelchair users into mainstream society, while simultaneously reflecting the vibrant world of disability-related arts, media, advocacy and philosophy. Our stories foster a sense of community and empower readers. Online and regular magazine.
Contact Info:
800-404-2898
75-20 Astoria Blvd, East Elmhurst, NY, 11370

Oley Foundation
Enriches the lives of those requiring home IV & tube feeding through education, outreach, & networking
Links to More Info:
Contact Info:
518-262-5079
43 New Scotland Ave, Albany, NY, 12208

Pacer Center
The mission of PACER Center (Parent Advocacy Coalition for Educational Rights) is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
Contact Info:
952-838-9000
8161 Normandale Blvd, Bloomington, ID, 55437

About Kids GI
On this site you will find support and information about digestive disorders in kids and teens.
Contact Info:
888-964-2001


Support for Special Needs
Support for Special Needs is the community that offers a chance to exchange wisdom and ideas among one of the most powerful group of people we know. Join us as learn how to advocate as one group and learn from each other about how to help our kids and ourselves


Brain Injury Association of Maryland
We are a group of individuals and organizations dedicated to improving the lives and futures of Marylanders affected by brain injury. Since being founded by a small group of family members of individuals with brain injury in 1983, we have grown to become the premier source of information, education, advocacy, and hope for the brain injured community in Maryland.
Links to More Info:
Contact Info:
410-448-2924
2200 Kernan Drive, Baltimore, MD, 21207

Children and Adults with Attention-Deficit/Hyperactive Disorder
The Maryland Chapters of CHADD bring together families and adults with AD/HD, educators and health care professionals. If you or a family member has been diagnosed with attention deficit hyperactivity disorder and you live in Maryland, then this is the place for you. The chapters hold monthly educational programs with local experts, support groups for parents and support groups for adults with AD/HD.
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Chesapeake Down Syndrome Parent Group
The Chesapeake Down Syndrome Parent Group (CDSPG) serves people with Down syndrome and their families living in the Baltimore metropolitan area. CDSPG offers support, education and advocacy programs to help families and individuals with Down syndrome reach their fullest potentials. Please join us as we continue to grow and learn together.
Contact Info:
410-321-5434


CASANA(Childhood Apraxia of speech association of north america)
To strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech.
Contact Info:
412-343-7102
416 Lincoln Avenue , Pittsburgh, PA, 15209

Snappin' Ministries
Welcome to Snappin' Ministries, a nationwide support network for parents of children with special needs. Our mission is to support and encourage those living with the daily challenge of parenting a special needs child, so that they may experience the genuine love and hope of Jesus in their everyday lives.
Contact Info:
262-567-1277
380 Yosemite Road, Oconomowoc, WI, 53066

ParentCentral.Net
ParentCentral.Net is a special place where you as a parent can communicate with counselors and other parenting professionals and receive answers within 24 hours. Also has a line for teens to get help and advice.
Contact Info:
000-000-0000


JSSA: Autism Spectrum Disorders Across the Lifespan
Services and programs provide support for the whole family empowering them to make informed decisions and access neededservices that maximize the quality of life, development potential, and functioning of their loved ones and the enitre family as an unit.
Links to More Info:
Contact Info:
301-838-4200
200 Wood Hill Road, Rockville , MD, 20850

Maryland Parent Connections
Learning that your child is deaf or hard of hearing can be a traumatic experience. Parents have many questions and concerns in coping with their child’s needs and their own feelings. You are not alone. We have been there.
Contact Info:
443-277-8899
801 Cromwell Park Drive, Geln Burnie, MD, 21061

Grace Fellowship Church
At Grace, we recognize the essential and invaluable contribution of people with disabilities to the life of the church. Disabilities have a significant impact on individuals and families, so there is an incredible need for support and understanding from the Christian community. Grace’s disabilities ministry hopes to be a voice to not only infuse those with disabilities into the fabric of the church, but to also care for those at every age affected by disability.
Links to More Info:
Contact Info:
410-561-8424
9505 Deereco Road, Timonium, MD, 21093

Unique
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide.
Links to More Info:


Special Needs Kids Information, LLC
Here at Special Needs Kids Information, LLC, it is my mission to provide parents and guardians of children with special needs in the DC, Maryland,and Virginia area with information and a comprehensive list of doctors and specialists that have been most helpful to others.
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Sickle Cell Association of the National Capital Area, Inc.
The Sickle Cell Association of the National Capital Area, Inc. (SCANCA, Inc.) is a community-based organization serving the District of Columbia, Montgomery and Prince Georges Counties, and Northern Virginia. Our focus is to educate individuals about the management of sickle cell disease.Our education programs include workshops, health fairs, client support groups and publications that inform the community, including health and social professionals about sickle cell disease.
Links to More Info:
Contact Info:
202-271-5733


Sickle Cell Kids
A website geared for kids to teach them about Sickle cell disease


Kids Health
KidsHealth is the most-visited site on the Web for information about health, behavior, and development from before birth through the teen years.KidsHealth is more than just the facts about health. As part of The Nemours Foundation's Center for Children's Health Media, KidsHealth also provides families with perspective, advice, and comfort about a wide range of physical, emotional, and behavioral issues that affect children and teens.
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Children's Hospital of Philadelphia
Since its start in 1855 as the nation's first hospital devoted exclusively to caring for children, The Children's Hospital of Philadelphia has been the birthplace for many dramatic firsts in pediatric medicine. The Hospital has fostered medical discoveries and innovations that have improved pediatric healthcare and saved countless children’s lives.
Links to More Info:
Contact Info:
800-879-2467


West Virginia University
WVU Healthcare is two corporations, University Health Associates and WVU Hospitals, united by a single mission: To improve the health of West Virginians and all we serve through excellence in patient care, research, and education. Our operations on WVU’s main campus and in the Morgantown region are managed together to ensure patients can receive the same high level of service across all WVU Healthcare facilities.
Links to More Info:
Contact Info:
800-842-3627


Mended Little Hearts
Mended Little Hearts is a program of the Mended Hearts Inc., a non-profit, volunteer-based organization providing hope, help and healing to heart patients and their families since 1951. The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.


Saving Little Hearts
Saving Little Hearts is dedicated to helping children with congenital heart defects and their families by providing emotional assistance and educational information primarily through the distribution of Care Packages.
Links to More Info:
Contact Info:
865-748-4605


Maryland Sickle Cell Disease Association
The Maryland Sickle Cell Disease Association, Inc. (MSCDA)seeks to work collaboratively with patients, families, healthcare providers, federal and state agencies and other community based organizations to promote advocacy, education, research and excellent healthcare delivery.
Links to More Info:
Contact Info:
410-465-4822
8775 Centre Park Drive, Columbia, MD, 21045

Southern Maryland Center for Independent Living
Southern Maryland Center for Independent Living is a nonprofit organization created by and for people with disabilities. We are an advocacy, information and educational center that promote independent living and empowerment for people with all types of disabilities.
Links to More Info:
Contact Info:
301-884-4498
38588 Brett Way, Mechanicsville, MD, 20659

The Dysautonomia Youth Network of America, Inc.
Founded in 1999, the Dysautonomia Youth Network of America, Inc. (DYNA) is the first and only 501(c) (3) non-profit organization in existence specifically dedicated to childhood/adolescent/young adult onset dysautonomia conditions. While our office is based in the US, our services are open to the world.
Links to More Info:


Autism Support group of Southern Maryland
The Autism Spectrum Support Group of Southern Maryland offers support and information to families and caregivers of people with Autism Spectrum Disorders in St. Mary's, Calvert, and Charles Counties, MD. Meetings are the 3rd Wednesday of the month 6:30 - 8:00 p.m.
Links to More Info:
Contact Info:
240-561-8860


Baltimore County Family Navigator
The Baltimore County Family Navigator service is a free service offered to parents and caregivers of children with intensive needs related to behavioral/mental health or developmental disabilities. Family Navigators are experienced parents or caregivers of special needs children who have navigated through systems of care on behalf of their children.
Links to More Info:
Contact Info:
410-252-4700
2300 Dulaney Valley Road, Timonium, MD, 21093

Menucha
Our Mission is to support Jewish children with special needs and their families in a culturally sensitive manner.The only Kosher Respite/Jewish immersion program of its kind in the State of Maryland! Weekday and weekend programs that introduce children with special needs to their Jewish heritage and help them to integrate into the community.
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Contact Info:
410-205-6447
2934 Bartol Avenue, Pikesville, MD, 21209

Resources for Independence
The purpose of Resources for Independence is to provide services that promote independence, accessibility, self-advocacy, productivity, and quality of life for all individuals or groups of individuals with all types of significant disabilities, (A significant disability is one which affects a person in a limiting way in one or more areas of life functions such as: mobility, cognitive reasoning, communication, etc .)
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Contact Info:
301-784-1774
30 N. Mechanic Street, Cumberland, MD, 21502

The Autism Project
The Autism Project, Inc. is a non-profit organization serving students on the Autism Spectrum in Northern Calvert Co. Maryland. We work with students on all levels of the spectrum upon initial diagnosis through adulthood.We pride ourselves on adapting to the ever evolving needs of our students.
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Contact Info:
410-286-8240


MCTransitions.org
Montgomery County Transitioning Adults (MCTrans) is a grassroots discussion and e-group for families of adults with mild to significant disabilities as they transition from School age entitlements in Maryland to a young adulthood and beyond.


Baltimore Jewish Abilities Alliance
The Baltimore Jewish Abilities Alliance assists families in finding the programs and services they need for their loved ones with different abilities, strengthening their connection and enabling them to more fully participate in their communities.
Contact Info:
410-559-3613
5700 Park Heights Avenue , Baltimore, MD, 21215

Potomac Community Resources, Inc.
Potomac Community Resources, Inc. (PCR) provides therapeutic, recreational, social, and respite care programs for teens and adults with developmental differences, as well as information about community resources for families.
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Contact Info:
301-365-0561
9200 Kentsdale Drive, Potomac, MD, 20854

National Multiple Sclerosis Society
We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
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Parents of Ill or Pregnant Students
We welcome parents and care-givers of children with all physical and mental illnesses, as well as parents of pregnant teens.All of us work with schools to educate our children even as we help our children navigate serious medical issues. The experience can be difficult and isolating, but we hope that this parent group and these resources can make it less so.


Camp Sun Sibs
SunSibs is a weekend camp for children ages 5-17 who have had a sibling diagnosed with cancer. Camp will be held over Memorial Day weekend. SunSibs is free to siblings and offers sports and games, arts and crafts, swimming, a dance and theme-related activities. It’s a fun weekend!
Contact Info:
410-218-6096


NBS connect
NBS Connect serves as an internet-based support network for parents, guardians and individuals with inborn errors of metabolism. NBS Connect will capture and analyze information related to inborn errors of metabolism in an effort to assess gaps in service, access to care and to develop best standards of practice for clinical management and connect families to research opportunities. NBS Connect strives to improve the quality of care of individuals with inherited metabolic disorders (IMDs).
Contact Info:
404-778-0553


NICU Helping Hands
It is our mission to provide comprehensive support programs and resources to parents of premature infants not only during their stay in the NICU but during and after their transition home. We are glad you have found us and we are anxious to provide you and your family members the support and assistance you need.
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Contact Info:
817-584-1437
301 Commerce Street, Fort Worth, TX, 76102

Kinera Foundation
Kinera Foundation will enhance the quality of life for children with special needs and their families by providing parent support groups, social activities, access to various treatments and therapies, while continuing to support inclusive and community programs.
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Contact Info:
443-249-3126
115 Sallitt Dr., Stevensville, MD, 21666

Center for Parent Information and Resources
The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
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National Caregivers Library
The National Caregivers Library was created by FamilyCare America, Inc. and is one of the largest single sources of information and tools for caregivers and seniors in the country. It makes it resources available to caregivers for free.
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Mitoaction
MitoAction's mission is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.
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Contact Info:
888-648-6411


Grandfamilies.org
The Grandfamilies State Law and Policy Resource Center serves as a national legal resource in support of grandfamilies within and outside the child welfare system. Our goals are to: educate individuals about state laws, legislation and policy in support of grandfamilies assist interested policymakers, advocates, caregivers, and attorneys in exploring policy options to support relatives and the children in their care provide technical assistance and training.
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Grahams Foundation
We empower parents of premature babies through support, advocacy and research to improve outcomes for their preemies and themselves. In addition to our care package programs, we have more than 20 trained parent mentors available 24/7 via email, phone, and text and the market-leading app for preemie parents, MyPreemie. We also recognize the courage and commitment parents of preemies demonstrate as they care for and advocate for their babies and children through efforts such as Parents of Preemies Day.
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Contact Info:
888-466-2948
1205 Louisiana Ave, Perrysburg, OH, 43552

Little People of America
Little People of America (LPA) is a nonprofit organization that provides support and information to people of short stature and their families. LPA is only able to continue our work with support from members, friends and family.
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Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease. Our resources assist people who have MS, their families and caregivers, regional support groups, and healthcare professionals.
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Contact Info:
888-673-6287
6520 North Andrews Ave., Ft. Lauderdale, FL, 33309

Down Syndrome Network of Montgomery County
The Down Syndrome Network of Montgomery County (DSNMC), Maryland is an organization that provides support to families of children, teens and adults with Down syndrome. DSNMC empowers and supports individuals with Down syndrome, their families and the community through education, information, public awareness and advocacy.
Contact Info:
301-979-1112


Talbot Hospice Foundation
The Talbot Hospice Foundation offers patients and caregivers hope and dignity at the end-of-life. It is a privilege for our staff and volunteers to serve families during this challenging yet poignant time.
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Contact Info:
410-822-6681
586 Cynwood Drive, Easton, MD, 21601

MISS Foundation
Since 1996, the MISS Foundation C.A.R.E.S. for families experiencing the death of a baby or child at any age and from any cause. The MISS Foundation provides a sanctuary allowing healthy and necessary grieving in the face of tragedy which Western culture no longer fosters or supports.
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Contact Info:
888-455-6477
1700 Alcove Ct., Austin, TX, 78757

Epilepsy Foundation
The Epilepsy Foundation,has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.
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Contact Info:
800-332-1000


Prader-Willi Syndrome Association
PWSA (USA) was organized in 1975 to provide support for individuals, families, professionals and organizations and to be a resource for education and information about Prader-Willi syndrome. The association is governed by a national board of directors. The board works in conjunction with the paid and volunteer staff of the national headquarters, and a network of chapters throughout the country to direct the organization's operations and serve its members.
Contact Info:
800-926-4797


Foster Club
FosterClub's mission is to lead the efforts of young people in and from foster care to become connected, educated, inspired and represented so they can realize their personal potential and contribute to a better life for their peers.


Sisters By Heart
We are a volunteer organization that strives to help moms with newly-diagnosed babies. We provide care packages to make your stay in hospital a little easier. We also provide information and links to many resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and who understand what you are going through. We are here to help!
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Maryland Fetal Alcohol Spectrum Disorder Coalition (FASD)
An FASD Work Group was convened in July 2004 by DHMH and the Governor’s Office on Crime Control and Prevention. DHMH assumed sole responsibility for leadership and staffing of the work group in December 2004.
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Western Maryland Health System
Our facilities offer a comprehensive range of general and specialty services for medical, surgical, pediatric, geriatric and obstetrical patients. Sophisticated diagnostic testing services and state-of-the-art procedures are now available in one centralized location that is convenient to everyone in the tri-state area.
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Contact Info:
240-964-7000
12500 Willowbrook Road, Cumberland, MD, 21502

Cerebral Palsy Group
Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP.
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My Goal
MyGOAL Autism is a 501 c(3) non-profit organization with a vision to restore lives and families affected by Autism through Education and Empowerment.
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Contact Info:
877-886-9462


National Down Syndrome Society
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
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Contact Info:
800-221-4602


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