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Maryland Department Of Health And Mental Hygiene

Children And Youth With Special Health Care Needs

Accessible Resource Locator

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For assistance call us at 1-800-638-8864

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We found 32 results matching your search criteria 
American Cancer Society
A nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. The ACS has 12 chartered Divisions, more than 900 local offices nationwide, and a presence in more than 5,100 communities.
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Contact Info:
800-227-2345
250 Williams Street NW, Atlanta, GA, 30303

C.LA.S.S. Kids (Children’s Liver Support Services)
(Children’s Liver Support Services)- An organization that addresses the emotional, educational and financial needs of families with children affected by liver disease and transplantation.
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Contact Info:
877-679-8256


Oley Foundation
Enriches the lives of those requiring home IV & tube feeding through education, outreach, & networking
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Contact Info:
518-262-5079
43 New Scotland Ave, Albany, NY, 12208

Unique
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide.


Special Needs Kids Information, LLC
Here at Special Needs Kids Information, LLC, it is my mission to provide parents and guardians of children with special needs in the DC, Maryland,and Virginia area with information and a comprehensive list of doctors and specialists that have been most helpful to others.
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Sickle Cell Kids
A website geared for kids to teach them about Sickle cell disease


Mended Little Hearts
Mended Little Hearts is a program of the Mended Hearts Inc., a non-profit, volunteer-based organization providing hope, help and healing to heart patients and their families since 1951. The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.


Saving Little Hearts
Saving Little Hearts is dedicated to helping children with congenital heart defects and their families by providing emotional assistance and educational information primarily through the distribution of Care Packages.
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Contact Info:
865-748-4605


Maryland Sickle Cell Disease Association
The Maryland Sickle Cell Disease Association, Inc. (MSCDA)seeks to work collaboratively with patients, families, healthcare providers, federal and state agencies and other community based organizations to promote advocacy, education, research and excellent healthcare delivery.
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Contact Info:
410-465-4822
8775 Centre Park Drive, Columbia, MD, 21045

The Dysautonomia Youth Network of America, Inc.
Founded in 1999, the Dysautonomia Youth Network of America, Inc. (DYNA) is the first and only 501(c) (3) non-profit organization in existence specifically dedicated to childhood/adolescent/young adult onset dysautonomia conditions. While our office is based in the US, our services are open to the world.
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Family Voices
Family Voices is a national nonprofit family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Family Voices has brought a respected family perspective to improving health care programs and policies and ensuring that health care systems include, listen to, and honor the voices of families.
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Contact Info:
888-835-5669


M&L Special Needs Planning
We hope you find our website a resource to help with navigating the world of the family with special needs. M&L Special Needs Planning is dedicated to creating simplicity with the complex journey of special needs. It is our vision to be the known resource and go-to company for special needs life plans, government benefit counseling, life insurance needs, housing and seminar presentations.
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National Multiple Sclerosis Society
We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
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NBS connect
NBS Connect serves as an internet-based support network for parents, guardians and individuals with inborn errors of metabolism. NBS Connect will capture and analyze information related to inborn errors of metabolism in an effort to assess gaps in service, access to care and to develop best standards of practice for clinical management and connect families to research opportunities. NBS Connect strives to improve the quality of care of individuals with inherited metabolic disorders (IMDs).
Contact Info:
404-778-0553


NICU Helping Hands
It is our mission to provide comprehensive support programs and resources to parents of premature infants not only during their stay in the NICU but during and after their transition home. We are glad you have found us and we are anxious to provide you and your family members the support and assistance you need.
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Contact Info:
817-584-1437
301 Commerce Street, Fort Worth, TX, 76102

Mitoaction
MitoAction's mission is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.
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Contact Info:
888-648-6411


Grahams Foundation
We empower parents of premature babies through support, advocacy and research to improve outcomes for their preemies and themselves. In addition to our care package programs, we have more than 20 trained parent mentors available 24/7 via email, phone, and text and the market-leading app for preemie parents, MyPreemie. We also recognize the courage and commitment parents of preemies demonstrate as they care for and advocate for their babies and children through efforts such as Parents of Preemies Day.
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Contact Info:
888-466-2948
1205 Louisiana Ave, Perrysburg, OH, 43552

Little People of America
Little People of America (LPA) is a nonprofit organization that provides support and information to people of short stature and their families. LPA is only able to continue our work with support from members, friends and family.
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Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease. Our resources assist people who have MS, their families and caregivers, regional support groups, and healthcare professionals.
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Contact Info:
888-673-6287
6520 North Andrews Ave., Ft. Lauderdale, FL, 33309

MISS Foundation
Since 1996, the MISS Foundation C.A.R.E.S. for families experiencing the death of a baby or child at any age and from any cause. The MISS Foundation provides a sanctuary allowing healthy and necessary grieving in the face of tragedy which Western culture no longer fosters or supports.
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Contact Info:
888-455-6477
1700 Alcove Ct., Austin, TX, 78757

Epilepsy Foundation
The Epilepsy Foundation,has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.
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Contact Info:
800-332-1000


Prader-Willi Syndrome Association
PWSA (USA) was organized in 1975 to provide support for individuals, families, professionals and organizations and to be a resource for education and information about Prader-Willi syndrome. The association is governed by a national board of directors. The board works in conjunction with the paid and volunteer staff of the national headquarters, and a network of chapters throughout the country to direct the organization's operations and serve its members.
Contact Info:
800-926-4797


Foster Club
FosterClub's mission is to lead the efforts of young people in and from foster care to become connected, educated, inspired and represented so they can realize their personal potential and contribute to a better life for their peers.


NoTube
At NoTube, we help children learn to eat who've become dependent on their feeding tubes. We help these children learn to eat through on- and offline programs and 9/10 children go from 100% tube fed to 100% orally fed in a matter of 4-6 weeks of coaching.
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Contact Info:
646-583-0411


Cerebral Palsy Guidance
From information on cerebral palsy symptoms to financial assistance to daily living articles, CerebralPalsyGuidance.com covers all aspects of cerebral palsy. And all of our information is thoroughly researched and cited.


Sisters By Heart
We are a volunteer organization that strives to help moms with newly-diagnosed babies. We provide care packages to make your stay in hospital a little easier. We also provide information and links to many resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and who understand what you are going through. We are here to help!
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Cerebral Palsy Group
Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP.
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My Goal
MyGOAL Autism is a 501 c(3) non-profit organization with a vision to restore lives and families affected by Autism through Education and Empowerment.
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Contact Info:
877-886-9462


National Autism Association
The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.
Contact Info:
877-622-2884


National Down Syndrome Society
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
Links to More Info:
Contact Info:
800-221-4602


Charcot-Marie-Tooth Association
Our mission … to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. Our vision … a world without CMT.
Links to More Info:
Contact Info:
800-606-2682


Special Needs Advisory Group
We are committed to providing support, increasing awareness, advocating for change & promoting opportunities which enhance the lives of individuals with special needs and their families in the North Chesapeake region.


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